tpan.com: Test Positive Aware Network
Home
 

Positively Aware will treat all communications (letters, faxes, e-mail, etc.) as letters to the editor unless otherwise instructed. We reserve the right to edit for length, style or clarity.

Write to:
 
Positively Aware
5537 N. Broadway St.
Chicago, IL 60640-1405
Fax:   (773) 989-9494
E-mail:   publications@tpan.com


Subjects in this issue:

Peripheral Neuropathy

Guarded

Great Issue


Peripheral Neuropathy

I have had HIV for 10 years. I've had peripheral neuropathy for eight years. The only thing I could use for my PN was lidocaine jelly. My feet would get real hot and start burning real bad. My calves would have muscle spasms and cramping. My prison doctor took a chance and let me order something from a pharmacy at home, Maximum Strength Hawaiian Tropic Cool Aloe I.C.E. Burn Relief Gel with lidocaine. It has an instant cooling effect (I.C.E.) which is wonderful. Plus the lidocaine for pain and vitamins A and E, plumeria, mango, guava, papaya, aloe, passion fruit, taro and kukui nut. I don't know what the other extracts do, but the "cool aloe I.C.E." is perfect for relieving my PN. I hope you mention this to your readers.

Name withheld by request, Alto, GA

Back to Top


Guarded

I think Mr. Jones touched upon something when he wrote, "I know several sero-discordant couples in their thirties and forties between whom no transmission has occurred, and some of the couples have been together for over 10, 15, or 20 years. Sero-discordant couples are almost unheard of in the under-30 crowd."

I'm at that weird stage where I hang out with people in their 20s, 30s, 40s and older and I don't know if it's age as much as ignorance in all generations. People have forgotten the facts and rely on the worst-case scenarios like we can't share drinking glasses."

This first-person article touched me as a straight woman in her early 30s. I was involved with a man who was HIV-positive this year and have had people tell me I'm also positive. It's not that they assume I'm positive, too. They tell me I'm positive. One man was in his 40s, another was a woman in her 30s.

I wasn't hurt because I've seen ignorance in many forms in my time on this planet but it does scare me that people can be so ignorant.

There seems to be a public awareness "kick" again and I hope it dispels some ignorance. Alas, I'm not hopeful.

Stephanie Flemin, Toronto, Ontario

The world is full of cruel people and some of them are not even aware of the pain they instill in others. Imagine one of those people who wrote about people being diseased and unclean - what if tomorrow that same person learns that he is HIV positive - he will be looking at the very same people he

called diseased for support and help through the suffering he will find himself in. What a wonderful thing it would be if all people would be considerate and careful when they open their mouths or their thoughts to the world and be able to put themselves in the shoes of those who are suffering and in need of help/support in any way possible. People who are suffering in any way need the healthy and the beautiful looking into their lives to "normalize" their existence, because today, when you are living with HIV/AIDS, people look at you as if you are abnormal, thus I use the word "normalize."

One important aspect in the lives of the positives is family. Not just any family but one that is supportive, open-minded, loving and understanding. People who have such a supportive base tend to live longer than those who do not have it. Now imagine yourself with a family that rejected you because of your HIV-positive status and all of your friends ignoring you also for the same reasons. No wonder people die so fast from this disease. The irony of it all is that the stress of worrying about such selfish people who cannot bring others into their lives is the reason most people die - not forgetting the loneliness brought by shame that is made visible by those who make you feel inadequate and less human just because you are HIV-positive--not sick, not realizing that you did them a favor by disclosing your status to them, that alone is love at its best-otherwise you would have infected them all by being silent and taking out your frustrations on them, but yet you did the opposite. All you need is love, not judgment. Keep on being strong and don't lose the faith, Justin. May the good Lord help you find the right man for you, dear. That's what all of us are looking for-the right person who can love us unconditionally.

Name withheld, via the Internet

I wrote a poem recently, shortly after testing positive. I have been struggling with the old "death sentence" mentality and have been trying to adjust to this new reality. I have been having the same feelings as Justin shared in his article. I really enjoyed it. I hope you will forward my poem on to him.

R.J. Sloan, New York

Back to Top


Great Issue

Jeff, Enid, and the crew

I have to say that the July/August issue is your best yet. One compelling and informative article after another. Keith's interview with Tim'm west, Jeff's article about the CRA van, Eddie Young's Crystal Meth story, and Derek's about the needle exchange program were highlights, but it was all worthwhile reading.

Keep up the good work. Thank you.

Ann Hilton Fisher
Executive Director
AIDS Legal Council of Chicago
www.aidslegal.com

Back to Top

 
 
Main Positively Aware Page:
  Positively Aware
 
 

This site contains HIV prevention messages that may not be appropriate for all audiences. Since HIV infection is spread primarily through sexual practices or by sharing needles, prevention messages and programs may address these topics. If you are not seeking such information or may be offended by such materials, please exit this website.

Este sitio del web contiene mensajes de la prevención del VIH que pueden no ser appropiados para todas las audiencias. Puesto que la infección del VIH es propagada sobre todo con prácticas sexuales o por compartiendo jeringas, los mensajes y los programas de la prevención pueden dirigirse a estos asuntos. Si usted no está buscando tal información o puede ser ofendido por tales materiales, salga por favor de este website.

 
 

Opinions expressed in Positively Aware, Positively Aware en Español, or tpan.com are not necessarily those of staff or membership of Test Positive Aware Network (TPAN), its supporters and sponsors, or distributing agencies. Information, resources, and advertising in Positively Aware, Positively Aware en Español, or tpan.com do not constitute endorsement or recommendation of any medical treatment or product.

TPAN recommends that all medical treatments or products be discussed thoroughly and frankly with a licensed and fully HIV-informed medical practitioner, preferably a personal physician.

Although Positively Aware, Positively Aware en Español, and tpan.com take great care to ensure the accuracy of all the information that it presents, Positively Aware, Positively Aware en Español, and tpan.com staff and volunteers, TPAN, or the institutions and personnel who provide us with information cannot be held responsible for any damages, direct or consequential, that arise from use of this material or due to errors contained herein.

 
 
Home   | About TPAN   | Publications   | Client Services   | Events   | Online Directory   | Resources   | Contact Us