TPAN The Reunion Project
Founded in 2015 by activists living with HIV, The Reunion Project (TRP) is the national alliance of long-term survivors of HIV, collaborating with local and national HIV advocates, providers and researchers. Together, we convene and connect individuals and communities, sharing our experiences of survival and loss while honoring our past, and developing successful strategies for living and supporting one another—today and into the future.

Through in-person and now online events we’re creating lasting connections, and we invite you to join us. We host national and regional town hall meetings and webinars on a variety of current issues, featuring diverse speakers. And we facilitate breakout sessions that bring you into rich conversations with others. These are fantastic networking opportunities!

To learn about all of our upcoming events, we invite you to join our mailing list:

COVID-19 Pandemic and Vaccinations: What those of us living with HIV need to know

Dr. Carl W. Dieffenbach, National Institutes of Health, Director of the Division of AIDS and an inspiring panel of long-term survivors of HIV/AIDS discuss the latest information about the COVID-19 pandemic and vaccines for PLHIV. Part of The Reunion Project's bi-monthly series of webinars.

Who is a Long-Term Survivor?

There are many ways to be a long-term survivor of HIV. As a welcoming and open network, The Reunion Project holds an inclusive view of HIV long-term survival: 

• Many people who identify as long-term survivors have been living with HIV for 10 years or more.

• Others feel that their long-term survival is shaped by the experience of living with HIV since the time when there was no effective treatment.

• And others feel that their long-term survival experience is marked by going through different eras of their life—perhaps from being young adults to now being elders—while living with HIV.

• Some of our network members have been living with HIV for many decades and are still relatively young, because they have been living with HIV since birth. Others acquired HIV as young people, or later in life.

• We also welcome people who are not living with HIV to join our network or work groups as allies, many of whom have been involved or affected over the long-term.

Long-term survivors of HIV talk about the meaning of legacy

About The Reunion Project

The Reunion Project was founded in 2015 by long-term survivors of HIV Matt Sharp and Jeff Berry, who recognized that there is an entire group of individuals who had survived the epidemic but in many ways have been left behind by the community that they helped to build. The Reunion Project provides a safe space for survivors of HIV to come together and honor the fact that even though they have weathered great adversity and tremendous loss, many have come through the experience with a certain degree of resilience. We feel these stories deserve to be told, and shared, to help those who may need help in finding their way back out of isolation, depression, or post-traumatic stress that came as a result of surviving the epidemic.

The Reunion Project hosts one-day summits around the country. The summits consist of a mix of facilitated discussions, panels, and presentations led by key researchers, advocates, and long-term survivors of HIV and AIDS. The Reunion Project has received support from Bristol-Myers Squibb, Gilead, Janssen, Merck, ViiV and Walgreens, and TPAN, publisher of Positively Aware magazine. The Reunion Project has been to Chicago, Palm Springs, Philadelphia, Ft. Lauderdale, Atlanta, Seattle, Washington, D.C., Los Angeles, and virtually in New Orleans in July 2020.

The Founding Steering Committee included Sharp (San Francisco) and Berry (Chicago), along with Jeff Taylor, Palm Springs; Gregg Cassin, San Francisco; Chris Bartlett, Philadelphia; Waheedah Shabazz-El, Philadelphia; and Louis Spraggins, Chicago.  

An larger and more diverse Steering Committee is leading the group's efforts as we expand our programming, communications, and national network of long-term survivors.

The Reunion Project collective is proud to partner with TPAN in expanding our reach through Positively Aging, a large-scale program that helps innovate care for older adults living with HIV and connect peers to vital support, through meaningful programming in Chicago and in cities around the country, and with informative and inspirational outreach through Positively Aware magazine. 

Join us on our closed Facebook group to take part in the conversation, and for posts about upcoming meetings and events.

Follow us on Twitter at @Reunion_Project

For more information on The Reunion Project email us.

Honoring Our Past, Envisioning Our Future webinar

In late 2019 The Reunion Project hosted its first-ever webinar, Honoring Our Past, Envisioning Our Future. Facilitated by TRP Steering Committee member and national advocate, Vanessa Johnson, The Reunion Project shared highlights from the group's new Strategic Road Map and shared exciting plans for 2020. Click on the image below to view the webinar.

Report: Creating a Framework for HIV Survival

The Reunion Project National Roundtable Forum, a community-led, diverse coalition of advocates who are survivors of HIV from across the U.S., gathered March 30–31, 2018 at the Annenberg Center for Health Sciences in Rancho Mirage, California. Over the course of one-and-one-half days more than 50 advocates convened to develop a national HIV survivorship advocacy agenda.

The main objective of the Roundtable Forum was to come to a consensus regarding a Coalition of Survivorship, and to begin a process to build a sustainable and powerful movement.

This report summarizes the main findings of the meeting and the methods used.

The Unintended Consequences of AIDS Survival

Published on World AIDS Day 2016, “The Unintended Consequences of AIDS Survival,” a 24-page status report authored by Sharp with support from Bristol-Myers Squibb, calls attention to the lives and needs of people living with AIDS, particularly long-term survivors.

Read and download the report here.

Author Matthew Sharp, a 30-year AIDS survivor, was uniquely qualified to pen this particular survivor story as an eyewitness on the front lines in the AIDS fight. He is one of a handful of AIDS activists leading survivor mobilization efforts nationally with The Reunion Project.